The progressive muscle weakness caused by Pompe disease can lead to many different health problems throughout the body. Managing these symptoms with a variety of supportive therapies is an important component of overall patient care. Symptom management can help ease the burden of living with the disease and improve quality of life.
The effects of Pompe disease vary widely from person to person. Not everyone faces the same health issues. This may require that disease management be personalized for each individual.
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In addition, because Pompe disease is always progressive—meaning that it worsens over time—regular check-ups are critical for monitoring symptoms and adjusting care as needed.
Find out more about comprehensive care for Pompe disease
Genzyme Support Services
Learn how Genzyme can help people affected by Pompe disease with medical information, advocacy, treatment support, and more.
Organizations & Websites
Get lists of online resources and worldwide organizations and associations that offer information, support, and more for people living with Pompe disease.